The other day I got a second opinion regarding radiation
therapy. I spoke with another radiation oncologist who agrees with the first
radiation oncologist, Dr. M. I wasn’t happy with what he said. And I suppose I
could go off and find a third, fourth, fifth opinion until I find a radiation
onc who would agree with me.
And to agree with me the rad onc would have to say that I
don’t need rads.
But nope, he agrees that I need rads to the remaining lymph
nodes under my right arm, the lymph nodes above my clavicle on the right side
and my entire right chest wall. Again I was told that if I had a total node
dissection of my remaining axilla nodes and none of them show cancer then
perhaps they would change their minds about rads. But again, I am not willing
to do that.
And again I was told that because of my young age and the
aggressiveness of HER2+++ breast cancer having radiation would help increase my
overall chances of a progression free life. And that is a good thing, of
course. I sure would like to leave cancerland behind me with no regrets and
live a progression free life, who wouldn’t?
But (and I say this in a whiney voice) I don’t want to do
it. I really don’t. Please don’t make me. I have had enough. Mentally I am
broken, physically I am broken. Don’t break me anymore. I’m begging.
I realize the side effects of rads will be nothing in
comparison to recovering from surgery, will be nothing compared to the side
effects of chemo. But still, they will be something. And I don’t want them. I
don’t want to burn, I don’t want my throat to hurt. I don’t want to take the
risk that my expander could fail. I don’t want to be lopsided once my exchange
surgery is done because the skin on my right side has been compromised.
I don’t want to do it. I really don’t.
And then I am told that there is usually a month wait
between the last chemo and the first rads. A month. Chemo is set to end on Oct 23, so a month
later will be Nov 23. So Happy Thanksgiving and Merry F@#$%*& Christmas. Oh
yeah…and don’t forget Happy 40th Birthday. Damn.
You see, rads is daily. Mon thru Fri for like 28 to 33 “zaps”.
Except weekend and holidays, because apparently cancer doesn’t spread on
weekends and holidays. So even if I started on Nov 23 I would not be done by
Christmas because of those dumb weekends and holidays.
So I begged for an earlier start date. Wouldn’t 2 weeks wait
be enough? Can I please oh please be done by Christmas. He said Ok…maybe 2.5
weeks would be ok. So of course I pushed it a bit and asked if I could be done
by my 40th Brithday. Nope.
So now I need to go back to see Dr. M and get this shit
scheduled. And I hope to God that I can deal with it.
But right now I need to put it out of my mind. I need to
turn my energy towards positive thoughts to get me thru chemo tomorrow. I am
feeling weak today. I need your prayers.
Leah, I finish radiation next Friday, Sept 21 const t me if you want to.chat. Alicia from ,HER 2
ReplyDeletePrayers prayers prayers and then some more. Engulfing you in love and light.
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